Study Control Group – 6th MSEC

Control Group – 6th Myasthenia Gravis Symptom Evaluation Checklist (MSEC).

Currently this is only available to study participants.

Please choose the option that best describes your current symptoms. Be as honest as possible.

In terms of the word “daily” that means if you were to do this activity daily, would you have symptoms?  For example: Some MG patients are not physically able to shower daily. But every time they shower, their symptoms are severe. That person would choose “Daily – severe” because if they were able to perform the activity daily, their symptoms would be severe.

If you have any questions, don’t hesitate to ask.

This form is for informational purposes only and is not intended to diagnose or treat any patient.

SECTION I: SYMPTOMS

SECTION II: ADDITIONAL INFORMATION

If you have questions about how to do a Single Breath Count, or haven’t had a reminder on how to do one recently, please view this short demonstration given by Alice White-Kaminski.

For the next 3 questions, please ONLY list any changes you have made. (For example: Increase in medication dosage, or change in medications or treatments, etc.) If you have not made any changes, please answer “no changes”.

SECTION III: ACCOMMODATIONS/ASSISTIVE DEVICES

For the following questions please choose the option that best represents your frequency of use/need.

For example:  You may not go out everyday. But if you did, would you need to use your handicapped parking pass every time? If so, choose Daily.

Thank you so much for your time and participation in this study.